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Sjogrens, SFN, unbalanced walking, nystagmus
Autoimmune Diseases | Last Active: Apr 5 9:56am | Replies (22)Comment receiving replies
@nurse49. Have you gone to a university medical center or a large comprehensive medical center of excellence? You will usually find the doctors are more up-to-date and there is frequently research involved. When i first was diagnosed, the doctors didn’t know what the MRI was showing. My husband called the university hospital (about 1 hour away) and they said to come on down because they knew what it was. Thank heavens! It’s been a long road but I know I have good doctors. You could also try the Mayo Clinic Care Network.
https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members. They are centers of excellence that follow MC philosophy.
Is it possible for you to check into these resources?
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What was your diagnosis?
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Thank you… my physicians I have seen are with the Stony Brook University, as well as Northwell Health. Both are top notch facilities here in NY. My PCP, did mention about sending me to a CENTER….
The problem here with dealing with the University Hospital, is that they have too many patients…