1. < Osteoporosis & Bone Health

Just Finished 18 mos on Tymlos and....

Posted by sbt54 @sbt54, Mar 16 8:51am

I finished 18 months on Tymlos on Feb. 25th, 2024.
I'm very disappointed with my follow up dexa results.
4.8% worsening of left hip
4.2% worsening of right hip
5.2% improvement of lumbar spine
My Dr. says I definitely grew bone back even though it doesn't show.
I just don't understand.
I'm going back on Actonel monthly.
Anyone have any imput?

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leeosteo | @leeosteo | Mar 19 7:10pm
In reply to @windyshores "@leeosteo I think this is the study though I remember a chart from a different one....there..." + (show)
@windyshores

@leeosteo I think this is the study though I remember a chart from a different one....there are so many in my email!
https://pubmed.ncbi.nlm.nih.gov/32777516/
and
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8085670/
here is another oft-cited study on Evenity (dosing and timing)
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6362945/

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Thank you.

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janflute | @janflute | Mar 20 6:21am
In reply to @doglover1962 "I'm sorry to hear the disappointing news. It is my understanding that Tylmos and Forteo are..." + (show)
@doglover1962

I'm sorry to hear the disappointing news. It is my understanding that Tylmos and Forteo are good at building bone in the spine more so than the hip. Who knows what will happen to me when I start Forteo soon. I need it more so for my spine rather than the hip. Gotta keep that in mind. Thank you for sharing your results.

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You must be very disappointed. I will find out my scores in May after being on Forteo for almost two years. Does anyone have any statistics about taking one Reclast infusion vs. Fosomax continuously after Forteo or Tylmos to hold bones. I took Fosomax with no difficulties from 2003- 2008, so I am not afraid of it.

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1 reply
franie | @franie | Mar 28 4:48pm

What dose did you take daily

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1 reply
leeosteo | @leeosteo | Mar 29 5:50am
In reply to @janflute "You must be very disappointed. I will find out my scores in May after being on..." + (show)
@janflute

You must be very disappointed. I will find out my scores in May after being on Forteo for almost two years. Does anyone have any statistics about taking one Reclast infusion vs. Fosomax continuously after Forteo or Tylmos to hold bones. I took Fosomax with no difficulties from 2003- 2008, so I am not afraid of it.

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janflute, I would be interested in understanding your dxa scores and your follow up drug. I'm starting Forteo on Monday. I was on alendronate (generic fosamax) 2014-2019. Have been on drug holiday April 2019 until today (5 yrs). I have read anabolic drugs work better as first course vs a bisphosphates. My doctor feels I will still see benefits. She also wants to follow up with Reclast but is ok if I choose alendronate again.

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sbt54 | @sbt54 | Mar 29 7:14am
In reply to @franie "What dose did you take daily" + (show)
@franie

What dose did you take daily

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Hi, I did the full 8 clicks. I have an upcoming appt with a new rheumotologist in the beginning of May. Will update then.

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