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Sjogrens, SFN, unbalanced walking, nystagmus

Autoimmune Diseases | Last Active: Apr 5 9:56am | Replies (22)
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@nurse49

Yes thank you for your response . three neuro opthamologists have given me prisms but they only work if you look straight. My issue is right gaze like as if you were checking your passenger mirror before changing lanes
I did therapy. No help there
The neurologists aren’t any better I am beyond frustrated

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Replies to "Yes thank you for your response . three neuro opthamologists have given me prisms but they..."
Becky, Volunteer Mentor | @becsbuddy | Mar 28 7:12pm

@nurse49. Have you gone to a university medical center or a large comprehensive medical center of excellence? You will usually find the doctors are more up-to-date and there is frequently research involved. When i first was diagnosed, the doctors didn’t know what the MRI was showing. My husband called the university hospital (about 1 hour away) and they said to come on down because they knew what it was. Thank heavens! It’s been a long road but I know I have good doctors. You could also try the Mayo Clinic Care Network.
https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members. They are centers of excellence that follow MC philosophy.
Is it possible for you to check into these resources?

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