Connect
← Return to Myelodysplastic Syndrome (MDS): Did you have stem cell transplant?
Discussion
Myelodysplastic Syndrome (MDS): Did you have stem cell transplant?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jun 27 8:12am | Replies (54)Comment receiving replies
My husband was diagnosed with low risk MDS February of 2024. His diagnosis is a result of previous chemo in 2016 for base of tongue cancer. He has 7q deletion. Are there any others out there that have MDS as a result of previous treatment, and if so, what has been your journey to date. Thank you.
Replies to "My husband was diagnosed with low risk MDS February of 2024. His diagnosis is a result..."
Welcome to Connect @stevepark1955 I’m sorry to hear that your husband has another cancer issue. Cancer can be such a bear to overcome and unfortunately some of our meds aren’t discriminatory in what becomes collateral damage.
The positive news is his MDS is classified as low risk.
I see you posted in another MDS discussion here in the forum. There is a member in that conversation a little further back in posts who does have secondary MDS. There may be others as well but for now hopefully @jdaltonireland will be able to share their experience with you in this comment
https://connect.mayoclinic.org/comment/999026/
Is your husband receiving any treatment for this now?
My MDS is a result of surgery for a growth on my colon. The day before surgery my hemoglobin
was 13, seven days later it was 11.7, that was a year and a half ago. I am now diagnosed with
MDS, hemoglobin going down to 6, transfusions, headaches and just started chemo this week.
too old for bone marrow transplant (86)
Connect
Diagnosed in august 2014, MDS, no known reason for this horrible disease. Am on Aransep every other week, in oncologist office 25 miles away. Lab blood draw every other week to track hemaglobin 10 plus.
No taxis in this area so have to beg transportation.
Family on east coast and do not like to be around sick people! Husband died 2006 of agent orange cancer two hours away San Antonio, tx. Good luck Blessings to you both.