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Talked to hepatologist re: abnormal MRCP

Pancreatic Cancer | Last Active: Apr 16 5:54pm | Replies (22)

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@silver182

Next ERCP take biopsies right around the ampulla valve! Send those biopsies to Johns Hopkins. Ask them for the report! Sounds to me like you’re Amila valve is clogging up sometimes and then opening so it’s still working sort of, but have them look at that tissue very very closely!!

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Replies to "Next ERCP take biopsies right around the ampulla valve! Send those biopsies to Johns Hopkins. Ask..."

I can hardly imagine asking them to make sure they take a biopsy. But I am starting to wonder about the guy who does the EUS/ERCP's at the University. As I said, I'm at a teaching university in CA. So if you've heard of UCLA, UCSF University Medical schools, I am part of that. The doctor who did my last one is the same who is doing the next one. My last EUS/ERCP was virtually normal last summer. No cysts nor calibration of 5mm+ duct dilatation that repeated MRCP's are showing. Surely two radiologists didn't over qualify what the MRCP's are showing so that makes me wonder about the EUS/ERCP interpretation or what was or was not visualized. I have been doing some research through PubMed on the success rates of both of these tests to identify abnormalities and obviously nothing is 100%, but EUS is rated as the better test. I'm also wondering how far I should push to get the EUS/ERCP moved up. Without having spoken to any doctor, the University called to schedule it in July. But when I finally did speak with a doctor (not mine), he said he thought it should be moved up and he would try to see if that was possible. Four months is a long time to wait.