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Pancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 3 hours ago | Replies (1284)Comment receiving replies
I am Vicki Lynn, my husband was recently diagnosed with pancreatic cancer, March 14th. We're still going through the process of diagnosis and treatment chioces. We have been trying to find answers to his health issues since October 2023. Is this typical or should we go elsewhere for answers? Is it hard to get an appointment at the Mayo Clinic? Would it be a long process as well? Every appointment here seems to be several days appart. It seems like the cancer will become much worse before we find treatment. Could someone please advise me. Thank you
Replies to "I am Vicki Lynn, my husband was recently diagnosed with pancreatic cancer, March 14th. We're still..."
Hi @vlny2018, have you submitted a request for an appointment at Mayo Clinic? If not, click this link to get started: http://mayocl.in/1mtmR63
The sooner you submit a request, the sooner you'll hear back, right?
How is the diagnostic testing going? Has your husband's cancer been staged? How are YOU doing?
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Vicki
May you find lots of good advice here and from other sources as well.
For what it's worth, as one diagnosed with pancreatic cancer (Adenocarcinoma) not quite one year ago, and has been and will be treated at Mayo Rochester, here are a few thoughts and personal opinions.
1. Yes, it typically takes a bit of time to be seen at Mayo Rochester (apparently longer in Mayo Clinics in Florida and Arizona). It took me approximately 3+ weeks to get an initial appointment as a self-referred patient from distant Alaska. Some other renowned cancer centers with expertise in pancreatic cancer say they can see patients somewhat sooner (1.5 - 2 weeks) but I don't really know.
2. If you consider or elect to go somewhere else I urge you only to connect with cancer centers of excellence around the country, e.g., MD Anderson, MSKK, John Hopkins, etc.
3. Of course, the sooner definitive diagnosis and treatment begins, the likelihood of a better outcome.
FYI, there are several folks in this pancreatic cancer group fighting this disease who have an extraordinary amount of awareness of pancreatic cancer and offer informed advice. The moderator for this pancreatic cancer group, Colleen Young, is a very helpful resource as well. And of course PanCAN, the Pancreatic Action Network is a good source of information as well. https://pancan.org/facing-pancreatic-cancer/
I hope this helps a bit.
Best wishes to you and your husband going forward.