Hi @garden4me,

I can understand your disappointment at not being able to have surgery to remove this cancer. Please remember that it is always you right to get a second opinion. Mayo Clinic would be a good place for a second opinion. They have great cancer specialists. Here is a link with appointment information for their locations in Minnesota, Florida and Arizona, http://mayocl.in/1mtmR63.

If for any reason, you cannot be seen at Mayo, I would urge you to seek a second opinion at a Pancreatic Center of Excellence in your area. Here is a link to the National Pancreatic Cancer Foundation, https://www.npcf.us/about-pancreatic-cancer/. There is a phone number at the bottom of the screen. They might be able to refer you to a specialist in your area.

How are you feeling? Are you able to eat and maintain your weight?

I'm sorry about your situation. Teresa is right; you can always seek a second or even third opinion. Your situation sounds somewhat similar to mine in that I can't have surgery either, for two reasons. First, a Whipple can remove the organs, assuming there is no blood vessel involvement that could be dangerous. I have that blood vessel involvement, so that was the first reason I was declared inoperable. Second, during my staging surgery (laparoscopic) and Power Port installation, the surgeon saw several flat lesions elsewhere away from the pancreas. Like yours, they weren't on the CT scan. In fact, they've never appeared on any of my scans. They're not 3D enough to show up. The Whipple can't effectively remove all of those lesions, so that's where chemo comes in. I've now been on chemo for nearly a year, and we've knocked the cancer activity way down, and I feel good (except for a couple of days after chemo, which is always tiring). I wish you the best, and i hope chemo goes well Monday!