← Return to New Diagnosis of Adrenal Insufficiency. Anyone else?

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@sb4ca

Cortisol is an essential steroid for our body's systems including things like blood pressure and electrolyte balance. Without any cortisol, it would be fatal. It is an incredibly strong natural steroid and often compared to artificial steroids like prednisone. Any time the body is stressed-whether actual stress, illness or injury then the cortisol will normally rise to meet these new demands. With addison's disease, your body is not producing enough cortisol to even match your daily needs. And when you add any of the stressors mentioned above, the problem becomes much more severe with the body trying to draw on all the cortisol reserves that may not be there. This is among the reasons why you've been asked to reduce your stress loads but be aware that in times of illness or injury it may actually be worse. This is why you have an emergency kit and the need to alert any emergency/medical personnel about this dangerous disorder. Did you hear about the illness Amy Schumer recently announced? She has a secondary type of Addison's she acquired from getting too many steroid shots. In your case, you have a primary disorder but I thought you might be interested in hearing about a public figure that has something similar though hers will eventually go away. You absolutely don't want to find out how low your cortisol can go. Please make sure you follow all of your doctors orders and I wish you the best on this new journey.

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@bryanf and @sb4ca
I now have Secondary Adrenal insufficiency caused by the 49 days of 40mg prednisone over 1 1/2 yrs ago, unless the Brain MRI this Friday shows a tumor or other abnormality. Since my last post, I was also hospitalized for severe cardiac arrhythmia (bigeminy, pvcs, pacs) dehydration and a 102 temp. I begged the ER to start iv hydration and received 3,000ml in 2 days, 6.2 lbs in body weight of fluid. After bag 2, the cardiac symptoms disappeared and by bag 3, I felt almost normal. My stress level is still high and I feel depressed and like I'm grieving for my former self. I have reached out to a grief, trauma and coping therapist and see her next week. I'm worried that my Endo, whom I do like but who seems young, may not be properly managing my condition and when I ask questions about setting up hydration therapy, he asks his colleagues and they say "it's not standard protocol" but it is MY life. I've taught my whole family how to administer Solu-cortef and wear my ID necklace and bracelet as well as carry a QR wallet card with my entire medical history and specific crisis protocol on there that anyone with a smartphone or tablet can access. Just trying to be prepared but have also been visiting funeral homes and trying to make future decisions, which gave to be made at some point anyway. Hope you both are feeling OK?
Thanks for listening.