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Talked to hepatologist re: abnormal MRCP

Pancreatic Cancer | Last Active: Apr 16 5:54pm | Replies (22)

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@sb4ca

I really appreciate you sharing your experience. Last year I did have an ERCP with a liver biopsy. The pancreas only showed some dilation and didn't even show any cysts (they are very small). But my MRCP continues to pick them up. That is almost shocking you had 4 ERCP's before they found an abnormality or took the biopsy. That is the exact same area that they are thinking I could have an issue. What were they looking for and/or what test was showing something wrong if you don't mind me asking; what caused them to keep probing? My docs are hepatologists at a medical university in CA so I do trust them but this imaging stuff is really frustrating me. But the experience you're reporting makes it feel like it may be more common than I thought. I thank you for that.

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Replies to "I really appreciate you sharing your experience. Last year I did have an ERCP with a..."

Yes, I did have four ERCP‘s, but the first one cleared my symptoms up completely!! My symptoms were very unusual to say the least.. For approximately three months before my first ERCP, I felt like I was getting eaten from the inside out by red ants!! Have you seen the old western movie where the fellow was tied down by an ant pile and that was his torture well, that was mine! My liver count was through the sky. They kept looking at my eyes for yellow jaundice, which I had none! They were totally puzzled. At any rate, the first ERCP, the fellow went in, found my der-Vader valve basically clogged up..he burned it open I gushed out fluids. He said it was like getting buried in fluids, and from that moment on all of my symptoms, including all of those red ants went away.
As far as I was concerned, they had fixed me completely. He took biopsy on that ERCP had to go back in three more times probing and getting biopsies because nothing was coming back with any cancerous tissue until the last one the fourth one which I asked to have a piece of that sample biopsy sent to Johns Hopkins.
Johns Hopkins came back and says slight level one pancreatic. And so from that point on the Endo surgeon said go down and see Eric Kortz and get a Whipple.!!