Connect
← Return to New Diagnosis of Adrenal Insufficiency. Anyone else?
Discussion
New Diagnosis of Adrenal Insufficiency. Anyone else?
Diabetes & Endocrine System | Last Active: May 13 1:22pm | Replies (14)Comment receiving replies
I was diagnosed with adrenal insufficiency in May of 2021 after a trip to the ER. I was headed for bed that night and had trouble changing my clothes. My parents saw me an at first thought I was having a stroke. They rushed me to the ER where I spent two days in ICU and three days in MCU. I was suffering from dangerously low sodium levels caused by the adrenal insufficiency. The doctor said I was having an adrenal crisis and could have died if I had waited. I have been to the ER six times since for related symptoms. I was in college and the stress was way too much. It was impossible to manage. I eventually medically withdrew. My current job is not as stressful. It took me a long time to learn how to manage my medication based on what is going on with my life. The worst times are when I have bouts of nausea and subsequent vomiting. This depletes my medicine so I have to keep taking it. At times I just let it dissolve under my tongue so I don’t lose it when I vomit. I have also injected my self on many occasions with Solu-Cortef injections.
Replies to "I was diagnosed with adrenal insufficiency in May of 2021 after a trip to the ER...."
Connect
I struggle with the very same things. I’ve had several adrenal crises as well. I had gotten very sick about a year ago. My daughters hadn’t heard from me and after a few days had a’ wellness check’ done and found out I wasn’t well at all. I ended up in the ICU for a few days then a step down then a regular room.
The hospitalist said had they waited any longer I would have died. She also told us if I had another adrenal crisis and didn’t get the injection, I could die within 24 hours.
I don’t live by have myself any longer. I now live in a senior living place where they provide all meals, laundry assistance, etc. if I’m not at a meal they check on me. If for some reason I started talking gibberish or didn’t respond while they checked, they have a process to get me the injection and then to ER. I never thought I’d be living in a place like this. People and staff are all pretty nice. It’s been really difficult to go from 2 bedroom apt to a studio. I’m still getting use to it.
Let’s chat some more to connect and see if we can support each other.