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← Return to Permanent SIBO due to removal of ileocecal valve
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Permanent SIBO due to removal of ileocecal valve
Digestive Health | Last Active: Sep 23 10:49am | Replies (215)Comment receiving replies
I have been SUFFERING with SIBO and yeast in my gut ever since I had my ICV removed from my bowel resection in October 2022. I am currently trying to get a referral from my GI to meet with the Mayo Clinic team in Phoenix. I’ve heard of a nipple valve surgery where they intussuscept part of your small intestine into your large intestine and they create a valve that way. Has anyone looked into this? Has anyone had a surgery like this? I only feel somewhat normal when I take Diflucan and Xifaxan at the same time, but it’s not safe to take diflucan long term and my insurance company won’t approve Xifaxan long term. My symptoms return immediately upon stopping. I’ve tried all the diets. I’m feeling like surgery is my last resort. I’d love to do it if there is a team of doctors out there that can help. Any thoughts?
Replies to "I have been SUFFERING with SIBO and yeast in my gut ever since I had my..."
Hi
Did you find a fix of any surgeon / clinic that can rebuild artificial a valve ? I have same issue
I have same issue and SIBO getting worse and more debilitating. I cannot find a US surgeon who does this My GI doc just scoffs when I mention that. I would even travel internationally if I knew of a credible surgeon doing this. Love to hear of any updates
The University of Pittsburgh Medical Center does small bowel replacement (but you have to be very, very ill to qualify). Not sure what they do with ileo-cecal valves.
My ileo-cecal valve was removed 2001. Very healthy before removal. After removal I daily experience fatigue, flu-like symptoms - especially upon waking, 4-10 bms/day (mostly very loose and urgent) and live on a very limited diet of mostly white rice, avocado, sweet potatoes (Stokes are my favorite) and soup broth - - otherwise symptoms worsen. In 2001, I was 5' 10" and 150 lbs of muscle - today I am 123 lbs. I appear yellow in sunlight and have high bilirubin but the medical profession says its a red herring. Things that help: IBgard (OTC enteric coated peppermint oil); Visbiome (probiotic); herbal teas (elderberry, cats claw, nettles, echinacae, astragalus and several others); other items most naturopaths recommend; sticking to my limited diet; and keeping stress low (meditation helps). The road is challenging and there may not be anyone around you who understands - the ill ones have their own challenges and the healthy ones have a different focus. I wish you a quick and full recovery - - however - - if that does not happen - - I wish you strength and courage to bear your illness as best you can.
Hi, I am very curious if you have had the ICV replacement surgery and hopeful that you have the name of a surgeon who performs it. I see articles in medical journals back to 1981, so I am surprised that it's so hard to find a surgeon.
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I have the same issues, ileocecal valve removed in bowel resection surgery in 2003 and SIBO started 2014. I have never heard of the type of surgery that you're describing but my how I would consider it too! I'm very interested to hear if anyone else has info on it. Thanks for posting. I know the misery you're dealing with and I'm so sorry that you're going through all of this. Also, I did a round of Xifaxan and neomycin in November and Medicare and Medicaid wouldn't cover the Xifaxan so my GI doctor helped me apply for the pharmaceutical company's patient assistance program so I could get it at no cost. I'm not certain how often the company would approve low or no cost Xifaxan.