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Sjogrens, SFN, unbalanced walking, nystagmus

Autoimmune Diseases | Last Active: Jul 7 9:59am | Replies (25)

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@becsbuddy

@nurse49 I’m a little concerned. You mentioned all the doctors that you’ve seen, but no mention of what they did to improve your situation. Did the ophthalmologist suggest ways to improve your double vision? I had to do vision PT that really helped my double vision. And did the neurologist recommend physical therapy to improve your gait? And how about a cane or walking stick? At the least, ask your PCP for referrals to a vision therapist and physical therapy. Also, ask your PCP if they have gotten reports from the other doctors you saw and if there are any recommendations. These small steps will help you get control of your situation and become your own advocate. Does any of this sound reasonable to you? Will you get back in touch and let me know how you’re doing?

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Replies to "@nurse49 I’m a little concerned. You mentioned all the doctors that you’ve seen, but no mention..."

Yes thank you for your response . three neuro opthamologists have given me prisms but they only work if you look straight. My issue is right gaze like as if you were checking your passenger mirror before changing lanes
I did therapy. No help there
The neurologists aren’t any better I am beyond frustrated

Thank you for your concern
I finally got a diagnosis, after finding the right neurologist.
Degenerative Cerebellar Ataxia
So I’m not crazy, or drunk after all. Unfortunately there is no cure. We will see how this plays out.