Hi Colleen, I'm very busy with so many doctor appointments and my son is visiting me! He is from KY. I'm also a Veteran(US Navy) my medical care is currently through the VA San Francisco/Santa Rosa CA. Also at UCSF. My new VA Neurologist wants to re-evaluate my current health problems. They aren't even certain of an exact neurological diagnosis yet! I will check in when I can for messages. I'm 62 1/2 years old. I'm 100% disabled as a Veteran. Thank you ~Katt~

Hey @kathyzendner, Thanks for taking the time to respond. Please do keep us posted on the neurological diagnosis. In the meantime, enjoy your visit with your son this long weekend.

I know it is very scary. Flying through the air with no control and I always had injuries one of which is in my wrist and never healed. I went to all the round of doctors one can imagine to get answers and physical therapy. One thing that did emerge is I was walking on the heels not using my toes to walk and it did help a great deal when I started walking on my entire foot. Also I began to reflect. It takes as you know a lot of time to connect what happens to make one feel unbalanced. Even knowing at times when I was feeling a bit unbalanced took work and time to learn awareness. For me it takes stopping and doing an assessment even when I feel I can trudge forward. I have fibromylgia, neuropathy and migraines. All of which cause pain. . My son who lives on the opposite coast but chats everyday said I think you fall when you have mentioned to me that you are in significant pain even after taking medication that day. . I wondered if the pain was connected to my falls. So I went to my internist and asked her if she would increase my pain meds on a trial basis to see if it would help. I did find that living without pain as much as possible made a big difference. I also had my eyes checked and changed my prescription. I still get dizzy but now I am much more aware of my body and when I get dizzy I meditate and stop doing things. I just make it a rest day. Sometimes it may be a three day rest day but it beats falling. The dizzy spells seemed to be associated to when I try and get things done such as clean the house. So cleaning the house now is a major project as I have to separate it over many days. Physical labor of any kind is a challenge. I have had to really change my expectations of what I can do. I am very lucky that while I have stumbled I have not fallen in some time. I am able to stretch my arms out straight and realign my body which makes my balance return. Even a new pair of shoes was a trigger. I stumbled on the stairs so those boots are gone. Too bad I really liked them.
Hope this maybe helps a little.
Best wishes.