Some advice. Don't worry that You will not be taken seriously. You will be right. Dump your situation on your doc. It will help you find the right words if you ever do find a doc who cares enough to work for his pay. My genetics and other tests say I have a bunch of cancers, nerve issues and soft tissue issues for which I have seen about 30 so-called specialists. I have no more hope of finding anyone to help me; so I just do the best I can, and wait patiently to die. My wife has serious Alzheimer's, and most of the time can not remember my name (65 years married) or the names of our 4 kids or any of our 30 great grandchildren)gets the same response. "Come back in a couple years and we will see whether anything has progressed." I got the same story from several of the major clinics. Phooey. oldkarl