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@susanacj

I am sorry about you are going through, you just need to the right doctors and I think Mayo is your answer. I had root avulsion from c5-t1
Surgery to 'repair' and I do have lots of pain. I don't take medicine, but lately I have tried a meditation app called 'OMG I can meditate' it has helped my overall mood and reducing the pain somehow.

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Replies to "I am sorry about you are going through, you just need to the right doctors and..."

Thank you for replying Susan. How did they find the avulsion? what kind of test? was it just an MRI or was it a specialized myleogram or neurography? was your pain localized or did it affect the whole body as mine does now? My theory is that if I had caught it sooner, maybe the nerve damage wouldn't have worsened so that it now affects all of my nervous system. It took me years to realize that I am sensitive to wireless and cell phones and modems and other signals. That is another story but if I am able to stay away from wireless and cell phones then I am not burned, shocked, feel faint immediately and do not keep the horrible headaches that comes with it. I am not sure if anyone else has identified this in their life but I am finding all kinds of credible studies on the topic and countries around the world are legislating to protect their citizens (making wireless against the law in child care in Israel, Russia and France for example) here is one link explaining some steps they are taking http://www.ewg.org/research/cellphoneradiation/executivesummary
Meditation is great! wishing you good health! Best to you as well Kay!

There are ways to find out, didn't even have a chance to get a test because I was 4 month pregnant when I had the accident. They waited only 3 months until I was 7 months pregnant. I had the brachial plexus surgery and they discovered the avulsions. I was in surgery for 12 hours here in Houston. I wasn't able to really go anywhere else, butt I did go once to mayo just to find out if there was anything they could do later. My pain is like a spasm on my arm, it can start from my shoulder, elbow or anywhere on my arm and it travels like fire down to my fingers. I didn't have any other damage in that car accident, thank God. Also, my daughter and I survived the surgery too. She is a healthy13 year old now and was delivered until the 9 month. Don't worry, it seems like a lot to you because you don't know what really is causing all your problems, but God is with you and know you will be in the right hands. <br><br>Susana