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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: May 12 7:45am | Replies (298)

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@cher27

I was hospitalized due to swelling and severe pain. We thought it could have been a recurrence of cellulitis I had last summer (due to a skin biopsy gone very wrong). Was treated with antibiotics, but we all now doubt that there was any infection present. All the attending doctors confirmed what I already knew. Erythromelalgia. They told me to up the Gabapentin and take one aspirin a day! If that doesn't work after 30 days, try Cymbalta. That's it.

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Replies to "I was hospitalized due to swelling and severe pain. We thought it could have been a..."

Oh, thank you! Unfortunately, I had bad reactions to Cymbalta and gabapentin, so I cannot take those, there was nothing I could take, I tried them all and they did not work or I had really bad side effects. But I have something that may help you. I cannot stand socks and shoes, so I wear huge shoes or very soft stretchy cloth ones From sketchers, but as far as socks go I was asking my sister for her old socks to wear that were loose, but they did not last long before they were holes in them because they were old. But I found socks online! I can’t even tell that I have them on I am so happy. They are so soft but they also stay up! And they do not slip down. One time I got them on Amazon and one time I got them on walmart.com “Hugh Ugoli Bamboo loose fit diabetic crew socks, soft, wide, and stretchy with seamless toe and non-binding top”. They are wonderful! I have no marks on my legs from them. And they do not hurt