← Return to TSH was 7.94 and T4 normal I’ve had RA for over 35 years, hashimotos?

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@mothermary1

Good Morning, I got discouraged myself yesterday. Being new to Georgia their approach is very different than Boston. I had my tsh done monthly to be sure it was at the correct number for me. I need to know because I have chronic digestive disorder, my colon doesn’t work without laxatives and I have gastroparesis. Laxatives don’t always work so thyroid has to stay spot on.

I’ve been on Mayo for a long time looking for help. To keep my colon it helps to know my thyroid levels. In Boston every month. Yesterday, I said to endo through portal, it will be a month April 1 please order it and she said you don’t need it monthly I explained that so in 3 months we can check. Now, I’ll skip over her, reach out to pcp with exaggerated symptoms to get the dam lab. Every month I go through hoops. I’ve even paid out of pocket at Quest. My insurance has covered it monthly for 4 years.
I don’t get why they just don’t follow what you’ve been doing for a long time.
I also have a nodule. I had some discomfort during physical in the thyroid area but my nodule is in the strap muscle and it’s a watch and wait.
I did write back to endo telling her don’t agree with this new approach at all. It’s not what I’ve been doing. I’m waiting her response. It gets stressful because it’s a lab and I’m paying, not the doctor so why not.
Have a great day…Joanne

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Replies to "Good Morning, I got discouraged myself yesterday. Being new to Georgia their approach is very different..."

I’m so sorry you’re going through this. Change is difficult, especially when you yourself know what to do for yourself. I’m writing because your post caught my eye about your colon health. I had 18” of my colon removed and resected due to severe diverticulitis, which I suffered for years on and off with. Since my surgery in April of 2022, I got Covid in December of 2022 and lost my taste and smell. I also no longer get hunger pains and am wondering if it’s from my colon surgery. I’ve been seeing a pain management clinic at our Northwestern Hospital in downtown Chicago for Stellate Ganglion Block injections into my neck, to regain my taste/smell and so far (going in for a 3rd) some, but not much improvement. It’s been awful, to say the least, not tasting or smelling. I was not aware that your Thyroid had anything to do with your colon, but maybe you can explain that to me. This may be why I can’t taste or smell. You should also know that I am on Synthroid for Hypothyroidism and Hashimoto’s.