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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: May 12 7:45am | Replies (298)

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@nancyc777

Were they able to do anything different for you while you were in the hospital? How did they treat Your flare up? Are you taking any medicines or treatments that work? Yes, it is frustrating when other people just don’t understand. Maybe if you showed your partner some of the other peoples posts here, then your partner would understand better, because they would see that there are many other people just like you who have horrible symptoms and who deal with devastating pain.

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Replies to "Were they able to do anything different for you while you were in the hospital? How..."

I was hospitalized due to swelling and severe pain. We thought it could have been a recurrence of cellulitis I had last summer (due to a skin biopsy gone very wrong). Was treated with antibiotics, but we all now doubt that there was any infection present. All the attending doctors confirmed what I already knew. Erythromelalgia. They told me to up the Gabapentin and take one aspirin a day! If that doesn't work after 30 days, try Cymbalta. That's it.