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Does anyone have EPI (Exocrine Pancreatic Insufficiency)?
Digestive Health | Last Active: Nov 29 8:59am | Replies (110)Comment receiving replies
Have you had a scan called an MRCP that is a special MRI just for imaging the entire biliary tree (liver, gallbladder & pancreas). Or other imaging tests that have identified a pancreatic issue? Often I hear people getting diagnosed with EPI but are unaware of the reason why their pancreas is not releasing adequate enzymes. To me, the deficiency isn't the biggest problem, it is why you have the deficiency to begin with. If you haven't been given an explanation, there might be an underlying condition that has not yet been diagnosed and causes continued symptoms such as mild but chronic pancreatitis.
Replies to "Have you had a scan called an MRCP that is a special MRI just for imaging..."
MRCP was ordered yesterday by a Hematologist. A test I never heard of along with a special MRI that requires a certain MRI machine.
My gastroenterologist referred me to Hepatologist.
It matters which gastroenterologist you see.
I tried a local Dr he did not want a face to face only colonoscopy and endoscope. His report sd no Barretts, no sign of Chron's. I asked him on portal if I had a magical healing. He did not like being questioned. He only took 3 pictures and 2 biopsies. Sd for me to return to Tampa Gastroenterologist.
I did stages of Barrett's, fistula in esophagus, small bowel Chron's, gastroparesis.
Follow your instincts, change Dr if no answers.
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I insisted the Dr check for pancreatitis and cancer, so I had full work up done. Have 2 spots on my pancreas but they are not cancerous, also a non invasive gallstone. I was diabetic, but my A1c has dropped to pre-diabetic levels. Have a telemed appointment for next week, so we’ll see what he says. I have started spacing the ZENPEP out to one when I start 5he meal and one at the end, but things are still upsetting my stomach. Plus, I get chills after an episode. On top of all of this, I just found out I have a second meningioma (benign brain tumor), which means I’ll be dealing with that over the next few years. Specifically, either surgery or radiation to eradicate in, probably within the next month. So it will be a lot of issues with that, plus my EPI acting up. Sometimes it’s no fun getting older, but it sure beats the alternative. I keep telling people that God has me here for a reason- I has a stroke at 35, two brain tumors, spent a summer in a nursing home/ rehab for surgery on my ankle, almost fell off a mountain while skiing, now EPI, but I’m still going! Just happy he has seen fit to let me stay- I’m enjoying the ride!