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PMR - Decreased prednisone and pain returned

Polymyalgia Rheumatica (PMR) | Last Active: Mar 30 7:58pm | Replies (101)
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@ddonnagirl1

I am experiencing the exact same thing. I just dropped down to 3 mg from 4 and everything is starting to hurt again. Wondering if I should go up to 4 or 5 and then wean again? My Rhuemetologist wants me to start another drug to wean off prednisone but I really don't want anymore drugs in my system. Any advice??? I have had PMR since June 2022. All blood work has been normal throughout?

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Replies to "I am experiencing the exact same thing. I just dropped down to 3 mg from 4..."
John, Volunteer Mentor | @johnbishop | Mar 26 5:54pm

@ddonnagirl1 - My first time around with PMR it took me 3 and half years to taper off with the last six months going back and forth between 1 mg and 1/2 mg until I could finally stop with a minimum amount of pain (less that a 1 or 2 on my personal pain scale) when I woke up and would get better once I was moving around. I also used the less than 2 on my pain scale when tapering. If it was time to taper and my pain was up I would try another day or so on the same amount of prednisone to see if it got better. If not I would go up half of my previous dose so that I was still making some progress from the previous taper if that makes sense.

The 1 mg tablets are not too hard to split if you have a good pill splitter. Have you tried splitting the 1 mg tablet?

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southtexas | @southtexas | Mar 27 4:59pm

4 seems to about be my bottom, and that’s on the edge.

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