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How long does it take for you to move without pain and stiffness in a.
Polymyalgia Rheumatica (PMR) | Last Active: Mar 30 8:28am | Replies (22)Comment receiving replies
I agree with @art43 because I had no elevation but strong clinical symptoms. I limped along for 5 months before they showed up. All journal articles and other well-reputed sites state clinical symptoms are the main factor to consider. I wouldn’t fiddle up and down without clear direction from a doctor. I read others have upped and downed at their own volition. I’d say that’s dangerous as this drug is bad for the body. I’m off it now but still feel stiffness but not lost functionality. That is, I can lift my arms up but they feel stiff. Same with legs. Some days are better than others but I’m getting slowly better. I have no urge to go back on it despite these inconveniences because I know it will take up to 2 years for my body to recover from this disease and what the prednisone has wrought on my body. Gentle exercise really helps. On bad days I take a Panadol but that’s rare.
Replies to "I agree with @art43 because I had no elevation but strong clinical symptoms. I limped along..."
I have to respectfully disagree with you on strictly following Doctors orders, we all want to get off Prednisone as quickly as we can without going back to severe pain and disability. The pain and disability doesnt correlate with lab results and is affected by so many other factors, some of which we can control and others we cant. Doctors can only advise based on their observations but we are the ones who live the daily nightmare and have to do our own problem solving most of the time. ..without this forum, i would still be taking 15-20mg in the morning after 7 months and still feeling dreadful. These people who adjust doses have helped me get as low as 6.5mg and still have some quality of life !
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Same with me ... I never want to take Prednisone again although I would if the severe pain returned. I wouldn't take Prednisone for pain I can tolerate. I'm not interested in being "pain free" but some types of pain are intolerable.
Aquacise is what works for me. I usually spend some time in the hot tub after an hour or two of aquacise and/or swimming. Then a semi cold shower is invigorating. The recreation center I go to doesn't ever seem to have hot showers!
I was overjoyed when I discovered I could still swim and get into and out of the pool. I jump into the water. Getting out of the pool is more difficult but doable.