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Autoimmune Diseases | Last Active: Mar 26 4:59pm | Replies (34)

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@supernat10

Hi @dlydia I appreciate your input. How did your gallbladder appointment go? My primary care doctor diagnosed me with Fibro a long time ago, but I've never felt like it was accurate based on my symptoms, but I totally understand why she did, and I'm not ruling it out. For one, my pains typically start and stay in the same place (several key points throughout my body, but always the same spots). In my eyes, the diagnosis was divergence insufficiency, and I was told it was neurological, there's no physical reason they could find. Even had an MRI, so not even sure what caused it.
Another reason I don't suspect Fibro is that I get positive ANA high values (1:640 back in 2013 when this started, 1:80 back in 2020 but it was well after my episode ended, and 1:320 today). I know ANA is not always accurate, but it does go up for me when I'm going through an episode. My rhemy from 2013 thought I had lupus, because my back felt like it was on fire when I was walk out into the sunlight (with a long sleeve shirt on), among my many other symptoms and ANA positivity. But he wouldn't diagnose me with it formally. My most recent symptoms are so much more aligned with MS than Lupus. The only other odd bloodtest result is my iron supplies being nearly out of range (1 point from minimum). I just bought the most extensive liver and gallbladder tests I could find, and all was in range. But I will still discuss with my gastro. My CRP value was actually 0.6, which made me happy, because I was really concered these pains were cardiovascular, due to them throbbing with my heart rate and being in my chest, neck, and head. Score 1 win, I'll take it.

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Replies to "Hi @dlydia I appreciate your input. How did your gallbladder appointment go? My primary care doctor..."

@supernat10
My gastro appointment with the surgeon was good. I really liked her. We are going to hold off of the removal of my gallbladder for now and will check in with her in 6 months. She agreed with me that my neurological issues should be prioritized higher, especially to check/rule out MS and/or CIDP. I saw my PCP/primary doctor today and she is adding Gabapentin to my Rx list to help with nerve pain. She also want me to take my full dose of bupropion for depression (pretty significant and debilitating at this point compared to my “normal”…feel I am only functioning at 10%-20%). I have never been on it before and she said she would start me on the lowest dosage and I would take it at night since it can make you sleepy. She also wants me to see a sleep specialist again because I can’t breathe well using my CPAP for sleep apnea. I had no problems with it for 2 years and now I am having a hard time taking in deep breaths while awake or sleeping and can’t sing at church like I used to. I gasp for air now when I put the CPAP on so need to take it off and not sleep with it. My thoracic MRI came back normal which makes me happy (no stenosis/spinal cord compression or MS lesions noted). I see my new neurologist at the end of April (will try to get in earlier on a cancellation) and will ask for EMG, nerve conduction testing, MRI of brain, bloodwork for MS, spinal tap for CIDP, etc. if they agree it would help me get diagnosed with what is at the source/cause of my symptoms.