Connect
← Return to Treatment options that have worked for Small Fiber Neuropathy
Discussion
Treatment options that have worked for Small Fiber Neuropathy
Neuropathy | Last Active: Apr 20 2:04pm | Replies (106)Comment receiving replies
l have had symptoms in my legs and feet for about 4years, cramping and pain etc. referral to a neurologist "can,t help you, what do you want for pain" l am a retired RN and dont beleive medications are the best help. movement therapy , some herbal remedies are often more effective and beneficial. I am often exhausted with trying to live a normal single life with this affliction...so am looking for support in dealing with this elusive disability. No, the neuroligist offered no cause.....He appeared uninterested! any how I will troll thru all the suggestions on this site thanks Susan
Replies to "l have had symptoms in my legs and feet for about 4years, cramping and pain etc...."
My new neurologist--who takes PN very seriously and who, early in her career, even wrote published papers on the subject--often prescribes gabapentin, pregabelin, duloxetine, or amitriptyline (low doses, sometimes a combination of two). As for supplements and canabinoids, she doesn't think anything taken by mouth helps very much. Because topical lidocaine hasn't much helped me, she suggests that I rely instead on high-concentration CBD topicals. She said I can continue taking the often-recommended alpha-lipoic acid if I want, but that she has never had a patient who benefitted much from it.
Connect
Welcome @susanmarian, You are on the right track learning as much as you can about the condition and what can help provide some relief. One of the better sites for learning that I have found is the Foundation for Peripheral Neuropathy. Lots of great information including:
-- Living Well with PN: https://www.foundationforpn.org/living-well/
-- Complementary and Alternative Treatments: https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf
-- Past Webinars: https://www.foundationforpn.org/past-webinars/
Another thing you might find helpful to connect with others with similar symptoms is to open the search link at the top of any Connect page and do a search. Have you tried the search function on Connect?