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Keytruda causing eye side effects

Gynecologic Cancers | Last Active: Apr 20 11:56am | Replies (18)
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@annalena

Thanks @blanchette for sharing your experience! Today is 32 days since the symptoms began...When the side effects happened, I immediately made an appointment to see my ophthalmologist & she could find nothing wrong from the exam. The good news is that over the last week, my eye sight has improved! I have been treating it as severe dry eye. A great resource has been Dr Joseph Allen on YouTube: https://www.youtube.com/@DoctorEyeHealth Thanks to him, I have started using warm eye compresses, eyelid massages, night gels, and taking the supplements fish oil & lutein which have all been helping heal my eyes, though slowly. His video on 'Dry Eye Can Ruin Your Life' - https://www.youtube.com/watch?v=BJ-KDNdNykY - confirmed that my symptoms - blurred vision, sun sensitivity, & eye fatigue - can all be a result of severe dry eye. Please let us know what your oncologist says @blanchette.

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Replies to "Thanks @blanchette for sharing your experience! Today is 32 days since the symptoms began...When the side..."
blanchette | @blanchette | Apr 17 6:03pm

Hi @annalena - (hope this isn't a double post; my previous effort seemed to disappear into a digital black hole...)

Update: my uveitis is resolved after 26 days of prednisolone (steroid) eye drops. I had my 4th chemo infusion (minus Keytruda) on schedule last week. And am scheduled to have 5th and then last infusion of chemo plus dostarlimab (instead of Keytruda) on time.

I have amazing news to share. I had my 1st CT scan since starting chemo, and I'm N.E.D. No sign of those 5 metastatic pulmonary nodules. It feels unreal, after almost 9 months of cancer dominating my life. I asked my oncologist if I could skip the last 2 infusions, and he said no, we needed to mop up any microscopic bad boys. Rats!

I hope your own eye problem is resolved and you are doing much better. I'll keep you posted on whether I have any eye inflammation with dostarlimab.

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