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Mild cognitive impairment: What questions to ask the neurologist?
Brain & Nervous System | Last Active: Apr 17 10:02am | Replies (85)Comment receiving replies
One more thing… ask your doc how long the drug is expected to delay the worst of Alzheimer’s. I don’t know that I want to make it last longer - depending on which period of time we’re talking about. And by how much? With the side effects they describe, I might not want to take that risk for an expectation of only a six month delay. And once I’m in the period I can’t live by myself, I want it to go fast. So maybe I would take it now and ask my nurse who has my healthcare power of attorney to terminate it once I have to go to a facility to live. Just thinking about it out loud.
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My thoughts exactly. If the side effects make life worse for me and my family then I'm not sure I will do the infusions. Yes. This would be my question, too. How effective? How much extra time? I pray that the doctors will see all of us as people and not pressure us to go on meds or other treatments just to add to the research pool. I am determined to deal with this in a way that doesn't make things harder for my family and friends. A good point I had not thought about - to let my daughter know to stop the infusions when I get to a memory care facility. If my PET scan on Thursday does not confirm the Alzheimer's diagnosis, then they say I can have a spinal tap that will give me an accurate confirmation. I guess I do just want to know, one way or the other. I appreciate your comments. God bless. Patty