I’m sorry to hear about your daughter. I agree with everyone else on this forum that seeing a doctor who specializes in Bronchiectasis is key. It took me six months to see Dr. Pamela McShane at UT Tyler (five hours away from my home). She is an expert in this condition. That was a life-changing appointment. While Bronchiectasis has not been officially ruled out for me, mine is extremely mild if I have it at all. That is not what my local pulmonologist told me. He led me to believe it was much worse.

Dr. McShane is treating me for Protracted Bacterial Bronchitis (PBB). It’s most often seen in children, but research is beginning on adults. After three sputum tests to rule out NTM’s I am receiving a six week course of Bactrim for a severe sinus infection and I had Balloon Sinuplasty last week to restore restricted sinus passages. Dr. McShane used the analogy that when your roof is leaking your floor gets damaged. Both she and my ENT think this will be a game changer for me. Not quite one week out from surgery I agree. My lungs feel clearer and my airway clearance does not produce nearly as much as it did before.

In short, travel to see a respected specialist if needed. Build a good team of doctors who will work together on this condition with you and your daughter. Ask questions, do your own research and stay connected to this forum. It is an invaluable source of information and encouragement!