← Return to Sjögren’s Syndrome: how do you manage the symptoms?

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@b25alpha

Hi, I'm new here and grateful for the opportunity to connect with other's like you that are suffering with Sjogren's. Like you, I too started having symptoms immediately after getting my gallbladder removed. By the second day post surgery I sounded like a box of rice crispies when I got out of bed and walked to the bathroom. I thought it was just dehydration from sleeping so much and therefore not drinking enough water. I was wrong. Fast forward to present, my diagnosis via ANA- Anti Nuclear Antibody blood tests is Sjogren's', Hashimoto's, Rheumatoid Arthritis, & EBV-Epstein Barr Virus. I am told that EBV is the main culprit and causing the other three conditions to present with higher inflammation markers. I've been battling all for a year now with little improvement. I see a Immunologist tomorrow for a second opinion and am hopeful that I can get a good Plan of Care that may help to get the Jeannie back in the bottle, so to speak. * I wonder if there's a connection with getting the gallbladder out ??? I wonder if that is a trigger for activation of Auto Immune Disorders ??? Have you been able the get testing and a Plan of Care that's working for you ?

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Replies to "Hi, I'm new here and grateful for the opportunity to connect with other's like you that..."

I’ve had my gallbladder removed in 2008 and was diagnosed in 2018 with Sjogren’s only reason I found out then because I asked the dentist about my tongue being white and he said his wife had it. I believe I had it for a few years. Thanks for mentioning the gallbladder it might be the cause or it might not but how would we know if no one asks!

@b25alpha Welcome to Mayo Clinic Connect! I’m so glad that you found this site. Hopefully you stay with us and check out some of the other discussions.
This is very interesting! There could be a link between gallbladder disease and autoimmune:
https://pubmed.ncbi.nlm.nih.gov/29422240/
Guess I’m an outlier—I got my AI disease before i had my gallbladder out. Oh, well