When I see my neurologist on a couple of weeks, I’d like to understand whether there are milestones of sorts. Example: if you can’t find your keys, that’s frustrating. If you don’t know what the keys are for, that’s - in my mind - a milestone. What resources are available to my children to understand what’s helpful and what’s a waste of time.

I’m fortunate that I have a good friend who is a hospice nurse and she will help my children with that piece.

And what do I need to ask that I’m not.

As I said, I have a detailed plan

But we can chat another time about that.

Have a good evening.