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Mild cognitive impairment: What questions to ask the neurologist?
Brain & Nervous System | Last Active: Apr 17 10:02am | Replies (85)Comment receiving replies
Thanks so much for your reply. I was referred to a neurologist by my Primary Doc because of a short amnesia event and moments of "lost" words or names that I know, but my mind just sort of paused. Also I have felt off - just not able to concentrate very well and distracted easily. The neuro clinic gave me a memory test that I did pretty well on. I had an MRI which showed nothing at all abnormal. They suggested I get the bloodwork P181 to see if I had the biomarkers associated with Alzheimer's. The bloodwork showed my numbers were High. They said I am in the early stages of Alzheimer's progression. Now I am having a PET scan this week to help confirm this diagnosis. Honestly, I have a million questions and concerns about starting the infusions. The list of adverse effects is long and scary. I'm being very consistent about exercise, very healthy diet, social life, and activities that exercise my brain. I have faith in God and know He and my family and friends will walk with me through this. But it's scary, isn't it? I hope you have a wonder support group that will be there for you. Please let me know how you are doing as you go to next steps. Blessings.
Replies to "Thanks so much for your reply. I was referred to a neurologist by my Primary Doc..."
One more thing… ask your doc how long the drug is expected to delay the worst of Alzheimer’s. I don’t know that I want to make it last longer - depending on which period of time we’re talking about. And by how much? With the side effects they describe, I might not want to take that risk for an expectation of only a six month delay. And once I’m in the period I can’t live by myself, I want it to go fast. So maybe I would take it now and ask my nurse who has my healthcare power of attorney to terminate it once I have to go to a facility to live. Just thinking about it out loud.
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Same to you. My biggest observation is word retrieval. It’s pretty bad. And I noticed when they showed me a page with two shapes on it, and then asked me to draw them, I got the first but rarely remembered the second. So. It’s here.
I also have the high Tau181. I see neurologist on the 11th.
I’ve been planning for this likelihood for a long time. There is extensive family history so it’s no surprise. Time to start executing the early phase of the plan.
Let’s stay in touch.
Pam