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I wonder if Tymlos and Forteo only help trabecular bones.
Osteoporosis & Bone Health | Last Active: Mar 27 10:38pm | Replies (31)Comment receiving replies
Yes @windyshores I think it was me. I am so sensitive to medication and usually only do take half a dose of anything. I had also asked my endo about a lower dose, and he was fine with it. You had great results with a partial dose, but higher than what I am taking. I plan to talk to my endo about this. Maybe I should consider Evenity? I appreciate that you have posted ways to use partial doses with Tymlos, Evenity and Reclast. There has to be a way for us overly sensitive people to strengthen our bones!
Replies to "Yes @windyshores I think it was me. I am so sensitive to medication and usually only..."
Jumping in regarding dosage. I am also sensitive to medications, and cut pills in half a lot. I had terrible side effects with the full 80mcg of Tymlos at first, so I dialed it back to 40 for a month. I’ve been increasing slowly since (10 mcg about every 3 weeks), and I’ve now been on 80mcg for the past 2 weeks. I do have some side effects (headaches and increased heart rate), but they fade quickly and they’ve gotten less severe. My doctor says that everyone’s therapeutic dose may be a bit different, but if I only have 18-24 months to take this drug, I wanted to get the full effect for as long as possible. If you can try to gradually increase maybe one click per month, your body may respond well. Up to you and your doctor, of course.
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I started with full dose Evenity and then for the next two months, declined the second shot and only had one, so a half dose. I'll let you know my results. But most people do fine with it of course.
I continued to have side effects with Tymlos. I just want to make sure I am clear that ramping up/partial dose made it possible but did not entirely get rid of side effects.
I absolutely could not tolerate Forteo. This was before Tymlos was available. I tried everything. I went to an immunologist. I even used my kid's insulin syringe to draw up a 10% dose which was just not tolerable. So I get it when you say you couldn't tolerate it.
With Tymlos, I used a blood pressure cuff, hydrated, ate salty things, played around with timing, and after all my fractures (7 spinal) was grateful to tolerate 7 clicks for much of the time. Mysteriously I never tolerated 8!
We are all different. I am having neuro issues and joint pain on Evenity but the thing is, with Evenity, there is quite substantial bone growth (if it is working) in just a few months.
I hope you find a path to better bone health and I get it!