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Treatment options that have worked for Small Fiber Neuropathy
Neuropathy | Last Active: Apr 20 2:04pm | Replies (106)Comment receiving replies
I’m not sure why you think the previous post crossed a line and the linked article is full of misinformation. The article does talk about a skin biopsy as the best way to test for SFN contrary to what you say in your post. Also, the article contains nothing out of the ordinary that I haven’t read before but does a good job of summarizing symptoms and treatments. As far as many doctors, including neurologists, not being well informed or helpful in treating SFN, that has been my experience also. I am on my third neurologist and finally feel I have found someone who knows what they are doing. First two were terrible.
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I think the previous article about which you complained was pretty much on point. (BTW, I retired as editor of a clinical surgery journal, so I do know something about medical research. I also have suffered since 1991 with PN, and have since been diagnosed with at least 4 other forms of neuropathy, including idiopathic multifocal polyneuropathy.) While neurologists learn about PN in their first year, they are frustrated because it has no cures or even treatments other than symptomatic treatment (which is not very effective in all or even most cases. So they go on to concentrate on epilepsy and many other neuropathies that are more well-studied and "interesting." and that have proven treatments or even cures. Finding a neurologist who really knows and cares about PN is very difficult. After more than a decade, I recently found one!
I have quite a few chronic (and sometimes also incurable) comorbidities, and my new neurologist has confirmed that my PN can be associated with, exacerbative, or even causative of several of them--not including the rare, incurable, indolent lymphoma which may ultimately do me in and which was probably the originator of my 34-year journey with PNs.
Look, look, look online and elsewhere for neurologists who include PN in their specialties or concentrations, and pray that at least one of them works within a reasonable drive-time of where you live.