1. < Neuroendocrine Tumors (NETs)

Treatment for GI NET with liver mets not working: Options?

Posted by harley4650 @harley4650, Mar 16 3:25pm

had a tumor removed from small intestine 5/2022.that metastasis to the liver started octretide shots every 28 days,shots did not work very well with the liver tumors spreading, had four treatments of prrt with more tumors in the liver. looking for other options HELP

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Turkey | @tomrennie | Mar 25 3:33pm
In reply to @kim1965 "When our team brought it up as an option last spring, it kind of threw us..." + (show)
@kim1965

When our team brought it up as an option last spring, it kind of threw us for a loop. The main response from them is it’s a chance, although not guaranteed to remove NET from the body. We decided to get a 2nd opinion from Mayo Clinic in Rochester, just got back this week. They won’t suggest one way or the other, but said it is a very aggressive choice to do the transplant this summer. They suggest giving the body a rest and monitor it for a while, as long as the PET scan in June is same or better than recent scans. We are also checking in with Dr Lui in Denver to get his opinion also. Glad to hear your doing better!

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I am doing better thanks. I was sick for years before getting diagnosed. Covid didn't help. I like better! I get treated at Mayo Phoenix. Allowing the body to heal is important to my doc too. The transplant sounds a little aggressive to me, but we all have different comfort levels with our cancer and treatment. I have no problem at all living with NETs inside me as long as they can be managed. I want to avoid surgery. I have enough scars already! Thanks for giving me something to do homework on. My cancer and treatment are getting boring... are they ever??? Please keep us updated. We can all learn from your experiences. Give your wife a hug from me please.

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