← Return to Does anyone have upper back pain with MAC?

Discussion
bbeers avatar

Does anyone have upper back pain with MAC?

MAC & Bronchiectasis | Last Active: Jun 21 12:01pm | Replies (19)

Comment receiving replies
Profile picture for littlebuffalogal @littlebuffalogal

I have MAC and Bronchioestaia and I also see a chiropractor and acupuncturist. The coughing is very hard on my back and at times throws out a vertebrae. These pains will go away with treatment.
The other pain I sometimes have I believe is related to the lungs and bronchial tubes. It comes and goes and at times prevents deep breaths. I will find myself making shallow breaths. During good lung times I don't have it.
I was diagnosed with MAC in 2012 but in 2010 had begun trying to find out the reason for my cough. I was a prescribed and wildland firefighter at the time and thought the cough was from smoke. After full physical I was told I was in good health even though the cough remained and pneumonia would be an outcome from a cold.
Later a sample from my lungs at MD Anderson revealed the MAC. I only just learned of the Bronchioestaia 3 months ago from a respiratory therapist even though I've been in the care of a pulmonologist since 2010.
I have always been proactive with my health. My disappointment in the medical system has been another issue to deal with. I feel if I had had the information I could have been a better more proactive person and my lungs wouldn't have deteriorated as much. I am making changes and hopefully all will be better.

Jump to this post


Replies to "I have MAC and Bronchioestaia and I also see a chiropractor and acupuncturist. The coughing is..."

Bronchiectasis often appears with a MAC diagnosis, and is a known risk for people with repeated cases of pneumonia.
Since you have been a member for a bit over a month, you have probably read of the many cases where Bronchiectasis has not been diagnosed - now that you know about it, what steps are you taking to help your lung health?
Sue

@littlebuffalogal I have the exact same thing and sick to death of it. The last few weeks have been a nightmare with my upper back and my left lung where like you I cannot take a deep breath very often because the pain is excruciating. I see a chiro which helps only when it’s bad enough. Yesterday I went to see a physical therapist. Totally out of ideas, no longer see my doctors as they both said there’s nothing more they can do and I’m also now antibiotic resistant and have been taken off all. meds. Wish they would’ve checked earlier as antibiotics are powerful and I had been on them for 5 years, so there’s nothing that they can give me so between my nebulizing and taking natural stuff is all I have… This is a nightmare of a disease and I’m sorry for all of us that have to deal with it. We didn’t ask for it. Don’t mean to sound negative. But being in pain this long kind of gets to you. Take care guys.
Carley R.