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DiscussionPacemaker recipients: Looking for support from others
Heart Rhythm Conditions | Last Active: 16 hours ago | Replies (497)Comment receiving replies
Replies to "I had a pacemaker dual chamber in January due to my heart stopping. I have since..."
Just a few small things. First, exactly where in your chest do you hurt, and what does it feel like? Morie Gertz, of Mayo-MN, in "Amyloidosis --Diagnosis and treatment" points out that a line of pain between the point of the shoulder and the nipple often shows a sick spleen. A heavy pain in the center is often the heart, or a problem with the sternum. I had some success with my tachy-brady when I had a full course of EECP. It is painless, and did help after a few months after treatment. I doubted it at first, but eventually came around when the bad stuff eased. I still have some, but not nearly as bad. My pulse runs from 45-153 on any given day. It was running 40-175 while resting.
I am always intrigued with those of us who have received Pacemakers and our symptoms and reasons for our new best friend is as individually based as we are unique. Personally, I think it takes time for our bodies to adapt and adjust to the PM. Our heart has been fatigued for so long and use to doing its on rhythm now that an insert has been placed to help and assist I'm wondering if time and medication adjustments are apart of the equation. I've not had constant chest pains or anything that I would call chest pains. My symptom is more like a congested freeway at times and now those times are few and far apart. By this I mean who's in charge the PM or the heart once they figure that out life is good. Once I learned not to dwell on my PM life has been more normal. I'm pretty regular on working out several times a week and I find that most helpful. The reason I have a PM is due to bradycardia and having 6 second pauses. I have a new normal and we hit two years in June.
@cupcake1979 Hi and welcome to connect. I'm sorry to hear you are having some pain from your pacemaker I also had a pacemaker a while back for about 10 years but mine was for fast heart rate called Tachycardia. I would suggest some of the pain is from the initial surgery to put it in. I remember when I first got mine I had to take it easy for a few months while everything healed. Are you feeling better now that a few months have passed? Plus also how it works is different for everyone and can take some time to adjust it for your particular symptoms. If it is still bothering you I would get with your ep cardiologist so they can make adjustments. On the other symptoms your having make sure you tell the doctors so they can be addressed. Good luck and please let us know how you make out.
Have a Blessed Day
Dana
@cupcake1979 Hi I am wondering how its going? Its been a couple of months since the pacemaker surgery I prey the problems you are having are subsiding.
Have a Blessed Day
Dana
Hello @cupcake1979,
Welcome to Connect; I'm so sorry that you aren't feeling well, and we're glad that you've joined us.
We have an active discussion about pacemakers (and heart rhythm issues), which you may wish to see:
– Pacemaker recipients: https://connect.mayoclinic.org/discussion/pacemaker-recipients/
If you wish, you can post your concerns in that conversations as well.
Meanwhile, I'm sure that Connect members @balubeje @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98 @marke92 @bibi12 will return to share their experiences with you.
@cherfenn @oldkarl @incrediblemulk98 have discussed heart rhythm issues like tachy-brady syndrome (sick sinus syndrome), and I wonder if they have more insight to offer?
Here's some information about sick sinus syndrome from Mayo Clinic: http://www.mayoclinic.org/diseases-conditions/sick-sinus-syndrome/basics/definition/con-20029161
@cupcake1979, since you mentioned, "...am currently experience constant chest pains..." may I ask if your health care team has ruled out any coronary blockage? Are you able to take a lower dose of the beta blocker?