← Return to Treatment options that have worked for Small Fiber Neuropathy

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@retired123

Here is a link I found a few days ago. It is easy to understand and condensed. It seems so many doctors don't have a clue about SFN and I think sharing the graphics showing what you are experiencing might help your doctor's visit. https://suzycohen.com/articles/small-fiber-neuropathy-its-different/

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Replies to "Here is a link I found a few days ago. It is easy to understand and..."

I understand your frustration with peripheral neuropathy. It is often very difficult to diagnose accurately, and the standard treatment is often not as successful as it is in other diseases. Also, I understand how posting frustration on this forum, and connecting to others with similar experiences can be helpful.
However, your post crosses a line. Most doctors have much more than "a clue" about peripheral neuropathy, especially, of course, neurologists. It is simply a fact that PN is one of those diseases that is not yet well understood or treated. Idiopathic PN, being of unknown cause (by definition), is especially difficult. However, there is a standard diagnostic tool for small fiber PN (skin biopsy), which is well known and used frequently to make that diagnosis, contrary to what is said in your posted article.
In fact, I read part of the article you posted, and it is full of misinformation. My problem with posts such as yours is that they may discourage patients from seeking appropriate medical care. As an example, see the post above about taking too much vitamin B6.
Any honest doctor will admit that the state of the art regarding PN is less than satisfying. Also, trying new things on your own may be helpful. Every reputable medical professional is trying his or her best to help patients with a very challenging condition. They use the knowledge gained from thousands of studies (just google peripheral neuropathy) and years of training and practical experience. Obviously, this is not true of others who, without proper training or experience, are trying to make a quick buck. All of us (patients) have to be very careful of what we try and where we spend our money. The place to start is with the experts.