Tamoxifen prescribed after ADH (Atypical Ductal Hyperplasia) diagnosis

Posted by dkcbc24 @dkcbc24, Mar 21 1:49pm

I had a lumpectomy which revealed ADH. My doc started me on Tamoxifen. I was on it for 6 months, then had back to back surgeries for other issues so I had to go off of it. She wants me to go back on the drug but I'm hesitant. In the 6 months I was on it (at half dose) I gained a fatty liver, hot flashes, lost hair. Six months after going off of it, a test revealed a spot on my uterus and and an enlarged ovary. I had a hysterectomy that showed a polyp on my uterus that was hyperplasia. I apologize if this sounds whiney. I don't have the BRCA genes but my mother, aunt, grandmother, and cousin (all on the maternal side) have had breast cancer. My cousin took full dose Tamoxifen for 5 years and now has macular degeneration (unsure if Tamoxifen was the cause of course, but vision issues are another side effect). I am really stuck as to whether or not to take the drug. Again, I know many on here have had breast cancer so my apologies if this seems trivial in comparison. Would love to know if others are in a similar situation though, with taking it after ADH diagnosis. Thank you

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@resort

I had mastectomy on my right breast a year ago for triple positive breast cancer. Same time, I had lumpectomy on left breast due to ADH. Recently doctors thought my left breast had ADH again from the biopsy. It ended up nothing and completely benign and no ADH residual at all. But I underwent a mastectomy for it.

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Ho
What is ADH?

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@nbrooks

I have LCIS and ADH. I am not taking Tamoxifen. I have Lupus and the side effects from the combination are too risky for me. So I am having a double mastectomy. It has not been scheduled yet. I am seeing a plastic surgeon and then by breast surgeon in April. If I only had ADH and they removed it all, I might would seek a second opinion. As I have researched both of my conditions, there are conflicting advice as to what to do. I believe I am being very proactive. I have heard of women who took Tamoxifen for 5 years and endured the side effects only to get breast cancer after those 5 years.

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nbrooks , I had an inflammatory rejection from the breast implants . I know Lupus is an autoimmune disease so be aware and be aware that they can be problematic. I had mine removed after teo and a half years .

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