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Atypical Ductal Hyperplasia AND Invasive Lobular Carcinoma

Breast Cancer | Last Active: Apr 5 8:40pm | Replies (34)
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@leonielaw

I have ILC, and Lupus. Diagnosed at NWMH in Chicago, but went to City of Hope for 2nd opinion. They were shocked ILC was found so early (stage 1) through a mammogram/ultrasoud follow up. Want bilateral masectomy PERIOD! If a doctor refuses I will fire them and move on. This is my body, and my life. I don't want to walk on egg shells for the rest of my life- wondering if I will get cancer again. I will do all I can, and if it comes back after doing all I can- I will deal with it. However- I don't want to regret letting a doctor pressure me or dictate my decision. I will listen, research, speak to others, but ultimately- I WILL make the final decision.
In addition to ILC, and Lupus-- I have seizures. I must be careful because the hormone drugs impacts my seizure meds (Lamictal). This is quite a journey, and I Pray for strength daily 🙏

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Replies to "I have ILC, and Lupus. Diagnosed at NWMH in Chicago, but went to City of Hope..."
windyshores | @windyshores | Mar 24 7:41am

@leonielaw I have a younger family member on Lamictal for seizures. I suppose, at least, that hormone levels will be steady (undetectable according to studies) so once the initial adjustment is made, Lamictal levels will be stable. At least I hope, for you!

We have a legal right to symmetry. So we have a legal right to double mastectomy, whether done all at once or one at a time.

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