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@geegeebabe

I’m on ZENPEP. Medicare doesn’t cover Creon. Worked great for the first 3-4 months, now I’m back where I started. Hard to get hold of my doc and he seems indifferent to helping me. From what I have seen, most Gastroenterologists seem to lack any empathy for their patients. I had a great one years ago, he was the top world wide doc in the field. He treated my sister for severe Crohns issues. He called her his miracle child. I also saw him for GI issues. He had a great bedside manner, was patient, informative, and gentle. Unfortunately, he’s retired now. I wish I could find someone like him. The guy my sister goes to now is different than my doc, but she says the same thing I do, he’s not very good. I have seen so many complaints about doctors not being empathetic at all. I don’t know if it’s because they have too many patients with issues, or if they just don’t give a damn. I wish you the b3st of luck.

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Replies to "I’m on ZENPEP. Medicare doesn’t cover Creon. Worked great for the first 3-4 months, now I’m..."

I was diagnosed 6 months ago and have the same kind of gastroenterologist. I am now driving three hours to a new doctor and clinic. I’m low in all three major enzymes, with lipase being extremely low. Zenpep works great but it is terribly expensive. I found a pancreatic enzyme medication that works exactly the same for me. It is Vital Nutrients Pancreatic Enzymes. It costs $38.

I would look for someone affiliated with a large university. I’m in Columbus OH, and have an excellent GI through Ohio State.

Have you had a scan called an MRCP that is a special MRI just for imaging the entire biliary tree (liver, gallbladder & pancreas). Or other imaging tests that have identified a pancreatic issue? Often I hear people getting diagnosed with EPI but are unaware of the reason why their pancreas is not releasing adequate enzymes. To me, the deficiency isn't the biggest problem, it is why you have the deficiency to begin with. If you haven't been given an explanation, there might be an underlying condition that has not yet been diagnosed and causes continued symptoms such as mild but chronic pancreatitis.