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DiscussionDoes anyone have EPI (Exocrine Pancreatic Insufficiency)?
Digestive Health | Last Active: Nov 29 8:59am | Replies (110)Comment receiving replies
Replies to "I’m on ZENPEP. Medicare doesn’t cover Creon. Worked great for the first 3-4 months, now I’m..."
I would look for someone affiliated with a large university. I’m in Columbus OH, and have an excellent GI through Ohio State.
Have you had a scan called an MRCP that is a special MRI just for imaging the entire biliary tree (liver, gallbladder & pancreas). Or other imaging tests that have identified a pancreatic issue? Often I hear people getting diagnosed with EPI but are unaware of the reason why their pancreas is not releasing adequate enzymes. To me, the deficiency isn't the biggest problem, it is why you have the deficiency to begin with. If you haven't been given an explanation, there might be an underlying condition that has not yet been diagnosed and causes continued symptoms such as mild but chronic pancreatitis.
I was diagnosed 6 months ago and have the same kind of gastroenterologist. I am now driving three hours to a new doctor and clinic. I’m low in all three major enzymes, with lipase being extremely low. Zenpep works great but it is terribly expensive. I found a pancreatic enzyme medication that works exactly the same for me. It is Vital Nutrients Pancreatic Enzymes. It costs $38.