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@colleenyoung

Hi @skullbasecancer4, I can imagine you are concerned and worried with this new development of your husband's 27 year journey with chondrosarcoma of the skull. I'm tagging @stin26, who also faced this diagnosis in the hopes that they may have some experiences to share with you.

Watch and wait as a "treatment" can be so unsettling, like you're just waiting to the other shoe to drop. That's why I prefer to call it active surveillance, which denotes proactivity. It sounds like your husband's doctors feel that, despite finding a small sarcoma, treatment is riskier that simply monitoring it. By actively monitor it, they will know when action is better than leaving things as they are.

Did the cancer team suggest that proton beam may be an option when/if they time comes?

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Replies to "Hi @skullbasecancer4, I can imagine you are concerned and worried with this new development of your..."

Hi. Thank you so much for connecting me to someone else , who has this . It is such a rare tumor and even more the location is so dangerous. At this point , they just don’t know what the treatment would be yet . The piece they had to leave, is so close to curated artery . We scan again in late May . The unknown is beyond hard for me .