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Anyone out there with Autoimmune inner ear disease (AIED)?
Autoimmune Diseases | Last Active: Oct 31 6:20am | Replies (228)Comment receiving replies
Hello everyone, I have had a crisis for a day and a half, a lot of pressure in my ear, very loud tinnitus and hearing loss again with dizziness. I had been stable for 3 weeks, I am not taking any medication. I don't know what to do. On Tuesday I might be able to see the ENT doctor, but I don't know if I should start taking the 60 mg/day of prednisone again. The ENT doctor told me that in case of crisis, started taking prednisone again. Any advice? Tonight I'll have to take something to sleep, because this noise is unbearable. AIED. š
Replies to "Hello everyone, I have had a crisis for a day and a half, a lot of..."
I looked to see if Mayo had something on this but couldnāt find it. I did read about it on other major hospital sites. Prednisone is used to treat this condition but other medications can be used as well. With one autoimmune disease that I know of you take prednisone at first but after a while you can go off it, but start again with prednisone when symptoms return. Does your doctor have a patient portal? If so that might be the fastest way to get in touch. Please write again and let us know how you are doing.
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@teresaramirez Iām sorry that your tinnitus and pain have increased. Must be awful. Didnāt you just take two airplane trips? Have you checked to see if your ears are blocked by wax? I was told by a doctor that excess ear wax is a problem for the with autoimmune disorders. Just something to think about. I canāt advise you on the prednisone because Iām not a doctor. If youāre sure thatās what the doctor said, then itās your decision. Does the doctorās practice have an after-hours phone line? You might feel safer asking the on-call doctor.
Will you let us know what the ENT tells you on Tuesday?