"So now I’m at an impasse, as what’s next for me."

I hear that said so often, not by those recently diagnosed but by those who've searching for months and sometimes for years. Puzzlement is our stock in trade.

Earlier today, I mentioned in some post that I'm having a good deal of hip pain at the moment –– pain I'm chalking up to arthritis. But could it be some new manifestation of my PN? I don't know –– and who's to tell me, which one of my of my various specialists? After supper last evening I made a crudely drawn chart of my many doctors, with my PCP at the center and all the others circling round, pinwheel-like. I told my partner about my hip pain and that I thought I should talk to a doctor. But which one? Dr. V., the neurosurgeon? Dr. W., the neurologist? Dr. B., the physiatrist? Dr. M., the orthopedist? Or maybe I should talk to them all (which would take between Monday morning and Labor Day)? Some would say at least I've got all these specialists (and I am grateful for that).

But, at this moment, I, too, feel like I'm at something of an impasse.

Good ol' PN –– it's definitely a 6-ticket ride! 🙂

Ray (@ray666)

On Sat, Mar 23, 2024 at 3:21 PM Mayo Clinic Connect < nf+b13e5006+3187671@n1.hubapplication.com> wrote:

> ## reply above this line ##
>
>
> Mayo Clinic Connect
> *Comment* posted by @harley22
> < https://connect.mayoclinic.org/member/00-ddb0e563f9c7b334192503/?utm_source=connect.mayoclinic.org&utm_medium=email&utm_campaign=new_comment&utm_content=new_comment_intro_userlink&gt;
> on discussion "Hi I just found out recently I had neuropathy "
>
> I wish I had the answer to that question because I’m in the same boat as
> you.
> Gabapentin did nothing for me,and I was on it for a few years, also was on
> most of the other meds they give out for neuropathy and they didn’t help
> either.
> I also had infusions of IVIG for 8 months, and they didn’t help me either.
> So now I’m at an impasse, as what’s next for me.
> I’m just tired of being in pain in my feet daily..
> They re numb and I have pins and needles in them.
> Gets so bad I can hardly walk at times.
> VIEW & REPLYING
> < https://connect.mayoclinic.org/notification/3187671/?redirect_to=865e48aa8b5b320d4b1e%3Ahttps%3A%2F%2Fconnect.mayoclinic.org%2Fcomment%2F1039016%2F&utm_source=connect.mayoclinic.org&utm_medium=email&utm_campaign=new_comment&gt; Hey
> do sorry to hear what your going thru. My
>
legs felt
The same way. All
The way up to my knees. I couldn’t barely walk either. It’s getting better
tho. I am starting feel bit by bit some feeling in my feet. My friends
kitten was biting on my toes and even tho it hurt I was happy I felt it.
My big problem is my hands tho. Some days it’s not as bad. However trying
to do the things I love like makeup painting and art I have a really hard
time with. Even copping and tying my shoes or juat doing normal daily
activities is so frustrating. I feel so helpless. I’ve been taking the
vitamins and I’ve been doing my stretches and all but it just has a mind of
its own.
Well I’m sending you love and positive energy. I hope you and everyone else
starts to get better ❤️

> ------------------------------
> Unsubscribe
> < https://connect.mayoclinic.org/email/unsubscribe/discussion/42615/?token=c504111304b1f25e65f5d07d6cc7fccddcf0a2fce90d73748f35d69e5183f17a_65fe08f48d62a&utm_source=connect.mayoclinic.org&utm_medium=email&utm_campaign=new_comment&utm_content=unsubscribe&gt;
> from this content and see links to review my email settings.
>