← Return to Bronchiectasis - How ya feeling?

Discussion

Bronchiectasis - How ya feeling?

MAC & Bronchiectasis | Last Active: Apr 2 10:20am | Replies (11)

Comment receiving replies
@scoop

Hi @barbfit On another bronchiectasis support group, there were many 80+ year olds who had bronchiectasis since childhood. Their secret was frequent airway clearance. How often are you clearing your lungs? So while the disease itself won't get any better (non-reversible) you *might* feel better if you're clearing your airways more frequently. Easier said than done I know. It's quite common to cough up a lot of gunk even when there's not an exacerbation. Keeping an eye on the amount is good also so you can detect an exacerbation when there is one.

There's a book written by one of our group members @becleartoday , which is full of helpful advice for us sufferers. The name of the book is: "The BE CLEAR Method to Living with Bronchiectasis: A self-care guide to improving lung health and general well-being" available on amazon for kindle or paperback. It's well worth a read as it discusses fatigue, exercise, exacerbations etc.

Jump to this post


Replies to "Hi @barbfit On another bronchiectasis support group, there were many 80+ year olds who had bronchiectasis..."

Hi ScoopThank you for taking the time to respond. I will definitely check out her book! Is it on Amazon? As for my AC since I always have a lot of mucus, I don’t even need reminding of airway clearance at least twice a day, sometimes three and I absolutely hate it, and I will be doing it the rest of my life! (As y’all know) I use 10% solution, others use three or seven %.) I use a massager, Aerobika and physiotherapy techniques. I tried the vest and didn’t find it very helpful. I do find if I don’t move my body I feel worse. It’s hard sometimes but I force myself. Let me know about the book. 😊