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Hi I just found out recently I had neuropathy

Neuropathy | Last Active: Jun 16 1:07pm | Replies (51)
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@ray666

Hi, Bob

At my second-to-last neuropathy appointment, I was invited to take a simple cotton-swab genetic test. That's because I had mentioned in passing that my brother (now deceased) had had some form of neuropathy. However, the results of my cotton-swab test came back negative, negative, too insignificant to tell, inconclusive, negative, negative. It's a rabbit hole, all right.

Ray

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Replies to "Hi, Bob At my second-to-last neuropathy appointment, I was invited to take a simple cotton-swab genetic..."
justbob | @justbob | Mar 23 1:04pm

Hi Ray,
Any recommended treatment? The internet is the wild West of scientifically questionable stuff even from seemingly reputable sources. Everyone seems to
want to throw gabapentin at it... With weird dosages anywhere from 100 to 7,000 mg.
Regards,
Bob

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Debbie | @dbeshears1 | Mar 24 7:43am

Ray - You got quick (or perhaps normal) DNA results back. I was told to expect my results back in 4-6 weeks. I am now at week 9 and getting antsy, wondering if it means 1) they found something and doing deeper dives 2) they didn’t find anything but doing deeper dives, or 3) they’re just backlogged. I remember the initial long list of blood labs they took at the beginning of all this, as I’m sure you do. My doctor back then said with each result “Trust me, it’s a good thing that came back negative!” Well, OK then, I’ll try to be positive about that. But I don’t think we’re completely weird for wishing we had a little hint of what it might be 🤔

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