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Hi I just found out recently I had neuropathy
Neuropathy | Last Active: Jun 16 1:07pm | Replies (51)Comment receiving replies
Hi Ray,
Thanks for getting back. Thus far, my "numb/no pain" feet (large fiber peripheral neuropathy) have drawn a diagnosis of diabetic neuropathy. The conclusion was fairly promptly reached based upon an EMG and a blood glucose test. However, given an A1C of just 6.0 (slightly pre-diabetic as are about 50% of the US population over 65), not at all overweight, cholesterol good, blood work so far ok, I am not yet convinced. Curiously, if one were to use the World Heath Organization's standard of 6.1 instead of the CDC's 5.7 as the beginning basis for pre-diabetes, I wouldn't qualify.
Maybe in denial, but I gotta be 110% convinced that the diagnosis is correct if I have to live with this forever. So, down the rabbit hole I go looking for answers that may never truly come. Given that they say there can be over 100 causes for neuropathy, it may surely be an insurmountable endeavor.
Regards.
Bob
Replies to "Hi Ray, Thanks for getting back. Thus far, my "numb/no pain" feet (large fiber peripheral neuropathy)..."
Hi, Bob
At my second-to-last neuropathy appointment, I was invited to take a simple cotton-swab genetic test. That's because I had mentioned in passing that my brother (now deceased) had had some form of neuropathy. However, the results of my cotton-swab test came back negative, negative, too insignificant to tell, inconclusive, negative, negative. It's a rabbit hole, all right.
Ray
Start looking at your blood relatives (siblings, father, grandfather) and see if there are any similar symptoms in the family. Somehow it makes me feel better recognizing that one of my sisters shares the same symptoms, even though she hasn’t seen a doctor for it.
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I'm guessing you might be in the pre-diabetic category like myself. You might want to read up on the metabolic syndrome which could be a factor. Here's some info I found after some long discussions with my doctor about not having diabetes and not buying into pre-diabetic diagnosis without an explanation which I never got from my doctors prior to being diagnosed with neuropathy.
--- The metabolic syndrome – What is it and how should it be managed?
https://journals.sagepub.com/doi/full/10.1177/2047487319886404
--- The Metabolic Syndrome and Neuropathy: Therapeutic Challenges and Opportunities: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3881591/
--- Metabolic syndrome as a risk factor for neurological disorders
https://pubmed.ncbi.nlm.nih.gov/21997383/