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Small Fiber Neuropathy, Sjogrens, Hashimoto's

Autoimmune Diseases | Last Active: Oct 3 4:11pm | Replies (38)
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@johnbishop

Hello @jlnda, From reading your previous posts it sounds like your nerve pain is in the hand you had surgery on or maybe both hands? I'm wondering if you have seen a hand specialist who specializes in hand disorders including nerve damage when you had the original surgery on your hand and if it might help to seek a second opinion with another hand specialist.

I'm not sure if it's a possibility but Mayo Clinic does have a hand clinic if it's an option for you. You can find more information on the hand clinic here - https://www.mayoclinic.org/departments-centers/hand-clinic/overview/ovc-20553124

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Replies to "Hello @jlnda, From reading your previous posts it sounds like your nerve pain is in the..."
jlnda | @jlnda | Mar 23 3:13pm

Hi John, I saw 2 different hand drs. In 2017-2018 when my index finger right hand was developing a squeezing pins and needles burn. They offered nothing because I had passed an EMG on my arm. I understand they can’t test small fibers will a standard EMG. I had previous signs of raynauds in a couple fingertips and very sensitive to cold. The pain spread to my whole hand within a year. The raynauds white fingertip discoloration never showed again but the hand can be mottled with extreme sensitive to cold always there, with intractable pain. Another EMG last September did show damage in my elbow. So I had the carpal tunnel and cubital tunnel surgery in October. It’s not a fix!
I appreciate the recommendation because I see they use ultrasound.
I saw a video about ultrasound being used to diagnose carpal tunnel . Wish I’d seen it before the surgery.
I might be able to consider it for next winter when I make a trip south. I’ve been suffering for so long, what’s another 10 months.

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