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Hi I just found out recently I had neuropathy

Neuropathy | Last Active: Jun 16 1:07pm | Replies (51)

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@justbob

Hi Ray, I was just diagnosed 2 months ago with peripheral polyneuropathy... And am heading down the rabbit hole of tests. May I ask what tests you endured before they gave up apparently and considered it idiopathic?
Thanks

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Replies to "Hi Ray, I was just diagnosed 2 months ago with peripheral polyneuropathy... And am heading down..."

Welcome @justbob, While you wait for @ray666 to respond, you might find these discussions he started helpful on his neuropathy journey.

--- Idiopathic Polyneuropathy: My endless journey to a near-diagnosis: https://connect.mayoclinic.org/discussion/idiopathic-polyneuropathy-my-endless-journey-to-a-near-diagnosis/
--- Axonal peripheral neuropathy: Finally, a diagnosis!: https://connect.mayoclinic.org/discussion/axonal-peripheral-neuropathy-finally-a-diagnosis/

Do you mind sharing a little more about the symptoms you have along with the diagnosis of peripheral polyneuropathy?

Hi, justbob (@justbob)

" … what tests you endured before they gave up apparently and considered it idiopathic?"

No time at all! "Idiopathic" was mentioned by my neurologist at the conclusion of my first-ever EMG in August 2022. Before that, there'd been not a whisper of "idiopathic" or "peripheral neuropathy," for that matter. If there'd been any delay, it was only a matter of 2-3 minutes –– 2-3 minutes I found very strange and a bit alarming. When the neurologist had taken his last reading and snapped off his machine, instead of coming straight to him to share the results, he drifted away and stood by the window, watching, I thought, the evening rain. When he finally came back to me, that's when he said, "I've good news and bad news, Ray. The good news is you haven't got something more serious. The bad news is that what you do have is serious but less so. What you've got –– because we can't point to a cause –– we call 'idiopathic peripheral neuropathy'." So, you see, justbob, I got all the discouraging news in one fell swoop. 🙂

Ray (@ray666)

I can tell you that my neurologist had me xrayed,then blood test,then gathered up info from my other dr's and finally the shock and needle test and its still going on with a new drug that i am not taking.