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Hi I just found out recently I had neuropathy
Neuropathy | Last Active: Jun 16 1:07pm | Replies (51)Comment receiving replies
Hi, Lynn (@lynn6578)
Welcome to Connect! I think you'll find that just hanging around Connect, reading others' posts and posting when you have a question or comment to make, is already a big step in learning about about your neuropathy. It certainly was for me!
I'm 79. I was diagnosed in the summer of 2022 with idiopathic polyneuropathy. I'm extremely lucky in that I have no pain. My two-pronged problem is poor balance and the need to be super careful walking from place to place.
I see that Mentor John has already given you a link to the Foundation for Peripheral Neuropathy (FPN). If you go there –– and I highly recommend that you do –– and look under Patient Resources and then under Past Webinars, you'll find links to the dozens of highly informative hour-long webinars the FPN has hosted over the years. I have found that even when a particular webinar's topic doesn't seem all that related to my neuropathy, if I listen, I'll learn something, and usually quite a lot.
Again, Lynn, welcome! Make yourself at home.
Cheers!
Ray (@ray666)
Replies to "Hi, Lynn (@lynn6578) Welcome to Connect! I think you'll find that just hanging around Connect, reading..."
Hi Ray, I was just diagnosed 2 months ago with peripheral polyneuropathy... And am heading down the rabbit hole of tests. May I ask what tests you endured before they gave up apparently and considered it idiopathic?
Thanks
Hi Ray, I have the same issues with idiopathic PN. Numbness, tingling, however the worse is balance!! I also must be very careful. My dr. had me on amitrtaline which after 4 months and nothing different except 8lbs heavier, I stopped taking it. It is mainly for pain, which I do not have. I have a vibrating platform, which has a handle(like a scooter) and I also bought slippers with the red light therapy, I exercise -4 days a week. With everyrthing combined I believe I am holding this numbness at and tingling from worsening. The balance has improved with the red light therapy. I have had 3 MRIs on spine and seeing a neurosurgeon to see if PN can be stemming from back, which I under
stand alot of this idiopathic PN stems from. We shall see. Keep posting any relief and balance issues if improving. Good luck to you.
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Good evening @ray666. You may want to change the @mention for Lynn to @lynn6578. It is a great response.
Chris