Connect
← Return to Treatment for GI NET with liver mets not working: Options?
Discussion
Treatment for GI NET with liver mets not working: Options?
Neuroendocrine Tumors (NETs) | Last Active: Mar 25 3:33pm | Replies (11)Comment receiving replies
Kim, I remember. Thanks for asking. I stopped taking temozolomide about 5 months ago and now only take capecitabine. My 4 month scan on March 6th showed no growth. My oncologist said stay the course of capecitabine, but I can take a month off when I want before my next 4 month scan. My body could use a break. Initially, he thought the lesions on my liver would be tricky. But, the CAP/TEM did their job and whacked the crap out of the little renters. The oncologist says there is no immediate need for concern about my liver. Everything is functioning properly. I understand the logic behind the liver transplant, but is it functioning properly? What are you and your wife thinking? I understand that the June Pet scan is a big factor.
Replies to "Kim, I remember. Thanks for asking. I stopped taking temozolomide about 5 months ago and now..."
Connect
When our team brought it up as an option last spring, it kind of threw us for a loop. The main response from them is it’s a chance, although not guaranteed to remove NET from the body. We decided to get a 2nd opinion from Mayo Clinic in Rochester, just got back this week. They won’t suggest one way or the other, but said it is a very aggressive choice to do the transplant this summer. They suggest giving the body a rest and monitor it for a while, as long as the PET scan in June is same or better than recent scans. We are also checking in with Dr Lui in Denver to get his opinion also. Glad to hear your doing better!