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Treatment for GI NET with liver mets not working: Options?
Neuroendocrine Tumors (NETs) | Last Active: Mar 25 3:33pm | Replies (11)Comment receiving replies
@tomrennie, how are you doing? Your case is similar to my wife’s. Our team is recommending a liver transplant to attempt to get a majority of the NETs that we know about out, but we haven’t agreed yet. We are waiting for a PET scan in June before we decide.
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Kim, I remember. Thanks for asking. I stopped taking temozolomide about 5 months ago and now only take capecitabine. My 4 month scan on March 6th showed no growth. My oncologist said stay the course of capecitabine, but I can take a month off when I want before my next 4 month scan. My body could use a break. Initially, he thought the lesions on my liver would be tricky. But, the CAP/TEM did their job and whacked the crap out of the little renters. The oncologist says there is no immediate need for concern about my liver. Everything is functioning properly. I understand the logic behind the liver transplant, but is it functioning properly? What are you and your wife thinking? I understand that the June Pet scan is a big factor.