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MAC Diagnosis and Medication side effects

MAC & Bronchiectasis | Last Active: May 5 6:11pm | Replies (42)
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@ecoen

Did you take the Big 3 for 3 years plus the IV? Did it clear up the MAC with the exception of the cavitation?
How is your aspergillus? Is it getting better? I couldn't tolerate the voriconazone (hallucinated) so am on Cresemba but just started and so far so good! Fingers crossed.

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Replies to "Did you take the Big 3 for 3 years plus the IV? Did it clear up..."
Rick | @rstel7272 | Mar 23 9:36am

28 months of the big3 + Amikacin iv for 12 weeks. Mac culture was negative by month 5 but ct scan still showed infection (Arikayce added for 5 months). A 6 month break then symptoms set back in so big3 restarted but all Mac testing was negative (even brochosopy) but aspergillus detected. Been on vfend for 15 months and counting. Cresemba would cost me $1000 per month ($6000 per month list price)

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